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I don't wish chronic illness on anyone but perhaps one day the authors of this article will experience the debilitating symptoms that individuals with ME/CFS go through. Karma is a bitch.

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Thank you for your calm summary of the Consortium‘s article. Simply reading that made me angry - so yes, I seem to be one of the „angry patients“ they talk about.

I am all about having a positive and even optimistic mindset, especially in dealing with my ME/CFS. And I made some progress with relaxation techniques, destressing, slowly starting to move again more. But I only got really better, when I got Paxlovid against a COVID-19 infection in February. I expected to get much worse during the infection, instead I found myself decluttering the kitchen while I had Covid.

I managed to stay rather well through several extremely stressful months this year! Now the effect seems to emasculate and I will try the nicotine patch from tomorrow on.

As with every illness there is of course a psychological element to ME/CFS. The more relaxed I am, the better I feel. But as more and more studies are conducted, the more evidence like bio markers are found for ME/CFS and Long Covid. I sincerely hope the people of the consortium will be proven wrong in the next months and years.

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